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Is anyone taking Benlysta????

If you are, what side effects are you experiencing? Any weight loss or gain? Hair loss? Rashes? Increased energy? 

I just got approved through a program to receive Benlysta infusions and I’m trying yo get feedback regarding this drug.

Damn it

So my left wrist is hurting…hopefully it will be gone by tomorrow because I am kick boxing…..Lupus have some stupid timing…..last week my right wrist was hurting….overall I’m a whole lot better but I still get these random ass pains…..

Happy Birthday to me…..

So today is my Birthday…..having Lupus has made me appreciate Birthdays more…..I am very thankfull to have completed another year of my life…….

Bullshit…..I just woke up and I can’t go back to sleep…..I’m itching like crazy too ( I think it’s Plaquenil)….I also got pissed off at work yesterday cause they fucked with my schedule, I think this is causing me to lose sleep (not good)….I realized that my free time is valuable….it is essential for good health……

So my hair has gotten long enough where I can cut it into a style…..Finally!!!!! I was getting tired of wearing wigs!

Update

Well….so finally! Most of the weight I gained on the Prednisone fell off. I ballooned up to 137 pounds and I am currently at 119 pounds. My normal weight is between 110-115 pounds….yeah!!!

2 weeks ago, I got sick and I think it was a combination of stress and the introduction of my new medication (Plaquenil)…..currently it seems like my body has stabilized itself and finally got adjusted to the medication.

sick of being sick

I’m so depressed……I miss the days before Lupus….I’m sick of being sick…..this is not the life I want to live…..I miss being able to eat normally and not force feed myself because I have nooooo desire to eat…I miss waking up in the morning with no pain….I miss not wearing make up because now I got to wear a pound of it everyday to cover the butterfly rash….I miss my perfect complection…..I miss being athletic…..I miss my energy…….those of you who have your health, please don’t take it for granted……

Olympian Shannon Boxx won't let lupus slow her down – USATODAY.com

Can it go away?

Fucking lupus…my hands are swollen….I have a rash on my elbows….a hint of the butterfly rash…..I’m very very tired…..

Woke up a little better…just a tad queasy…hopefully it gets better…

Logging off now…laying in fetal position…uhhhhh

God!!!!! What is up with me now?

I’m nauseous…….have a serious ache in my neck and a headache….been like this for the past couple of days…can it please go away!!!!!

So…..this is how long my hair is now…shaved it around December and it has grown a lot….still rocking the wigs because I’m used to my long hair…it’s like a security blanket… oh well… at least I’m off the Prednisone which caused the hair loss to begin with….

oh and don’t you like my earrings? :)

I’m tired….

Just got back from doing the Dirty Girl Mud Run…it was fun but not very challenging…it was easier than the Warrior Dash…now the Lupus tiredness is starting to kick in and I got get to a baby shower which is an hour away…..I WANT MY BED! lol 

God!!! My left hand hurts! This sh*t is soooo random! Lupus can kiss my a**!!